Cystic Fibrosis

Cystic fibrosis is a genetic disorder affecting the liver, pancreas, intestines and most critically the lungs.

Specialty Medications for  Cystic Fibrosis

Colistimethate

Website http://x-gen.us/

Patient Support 1-607-562-2700 Ext 352

Hyper-Sal

Website http://www.pari.com/products/accessories_other/product/detail/info/hypersal_sodium_chloride_solution.html

Patient Support 1.800.FAST.NEB

Pulmozyme

Website http://www.pulmozyme.com/

Patient Support 1-888-756-9963

Enrollment Form

TOBI and TOBI Podhaler

Website http://www.tobitime.com

Patient Support 1-877-999-TOBI

Enrollment Form

Kalydeco

Website http://www.kalydeco.com/

Patient Support 1-877-752-5933

Enrollment Form

 

Other Resources

Cystic Fibrosis Foundation

They are a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Their focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.

Boomer Esiason Foundation

The Boomer Esiason Foundation’s staff is comprised of individuals with expertise in cystic fibrosis and program development, event planning and fundraising, marketing and communications, and management. These dedicated people may come from all walks for life, but they all agree on one thing: they’ll do whatever it takes to beat cystic fibrosis.
Cystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

 

 

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